This is the specific definition of what I have, which is Takayasu Vasculitis (also called Takayasu Arteritis):
Takayasu’s arteritis (TAK) i s a rare form of vasculitis (“vasculitis” means inflammation of the blood vessels ) which affects medium and large sized blood vessels, primarily of the aorta (the main blood vessel that leaves the heart) and its branches. Inflammation of the large blood vessels may cause segments of vessels to weaken and stretch, resulting in an aneurysm (weakening of the vessel wall). Inflammation of the large blood vessels can cause narrowed or even completely blocked segments (called an occlusion).
The cause of Takayasu’s arteritis is unknown. Narrowing of blood vessels to the arms or legs may cause fatigue, pain or aching due to reduced blood supply. In some patients, decreased blood flow to the intestines may lead to abdominal pain, especially after meals.
Decreased blood flow to the kidneys may cause high blood pressure. Decreased blood flow to the heart can cause heart attacks. The standard treatment of Takayasu’s arteritis is with glucocorticoids, such as prednisone or prednisolone; other drugs that affect the immune system are used as well.
During the month of May, the Vasculitis Foundation will release 2 new videos a week on their YouTube channel outlining other dope survivor stories of people with Vasculitis.
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