fibromyalgia from the victim’s perspective

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These days, you hear about it all the time–on commercials, on social networks, and there’s that one random girl at your job who is always softly mentioning to everyone the things she cannot do due to it. But for those of you who don’t experience firsthand what a person goes through who has Fibromyalgia (also known as Chronic Pain), you simply won’t know how it feels to literally have pain control your life day in and day out.

Imagine going through your everyday schedule. Let’s just say your morning routine looks a little something like this:

  • You wake up from a long night’s rest; get out of bed with no problem whatsoever. You even got a lil pep in your step.
  • You head to the bathroom and turn the faucets on with ease. In the shower you go.
  • You wash your face, brush your teeth, and apply your makeup. You’re in a rush, but that’s ok. You can afford to move quickly.
  • You get dressed and accessorized and head to work. The music in your car is blasting and it doesn’t make you anxious at all. You’re amped for the day.

OK…. So people with Fibromyalgia don’t quite experience their day like that. Our routine is more like this:

  • We wake up once the alarm goes off. Note I didn’t mention that we ever went to sleep in the first place.
  • After struggling to get out of bed, we drag our feet and exhausted bodies to the bathroom to wash our face.
  • We use the little physical strength we have in our wrists to turn on the water to brush our teeth and wash our face. We get in the shower and for a moment, we feel relaxed from head to toe. Once we get into the car, we get ready for the fatigue that this traffic and drive is about to give us.
  • We search for the nearest seat to prepare mentally and physically to put our clothes on. We reach for the flats instead of the heels because today our balance is a bit off.

My point is living with chronic widespread physical pain is a task in itself. It is beyond exhausting. It’s like living in a bubble of constant discomfort and misunderstanding…walking on eggshells around your own body because you never know when it will start attacking itself.

The medical, scientific definition of Fibromyalgia is: a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain processes pain signals. It is usually accompanied with various illnesses, including autoimmune diseases.

There are many people who have been diagnosed with Fibromyalgia, but nobody can see it. If you take anything from this just know that it’s crucial to be sensitive to those of us out in the world who live with chronic, incurable diseases that are paired with nonstop physical pain, and understand that we are trying. We want to be as normal as possible so we don’t always bring it up. We go through the normal motions of life because we refuse to let these health issues take ours. But just know that Fibromyalgia very much exists, and is excruciating and sometimes unbearable. Yet we choose to bear without using it as a crutch should be respected. I’m not just speaking for myself. I’m speaking for the hundreds of thousands of us with chronic widespread Fibromyalgia.

Read more about Fibromyalgia here.  | Read more about Takayasu Disease here.

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2 thoughts on “fibromyalgia from the victim’s perspective Leave a comment

  1. Beautifully written, as someone who also deals with a lot of pain on a daily basis, you have my sympathy. I sometimes find it hard to inhabit a world, that has no idea how painful my life can be. I am however, lucky that pain is not my constant companion and I do have periods when I’m fine. I hope that one day there may be a cure for you and until then I admire your strength and determination. Look forward to reading more.

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